By collecting and sharing data on performed treatment and medical performance on rare diseases, we can gather knowledge and identify best practice. From there we can learn from each other and advance our methods to the benefit for the patient.
The Eurocrine registry reached 1 000 registered operations in the start of 2016, and have now passed 1 500 operations. There is still time for participation in the first analysis - if your clinic start now. 24 clinics from 12 countries are participating with data.